The Caregiving Role

A caregiver can be defined as someone who gives assistance to another person
who is no longer able to perform the critical tasks of personal or household care
necessary for everyday survival.

Taking on the role of caregiver may mean having to make changes in your social life, work schedules, stretching time and money, chronic fatigue, uncertainty of what the future holds, extra strain on you, your family, and those you come into contact.

Your family’s lifestyle and your own, will change. It may mean less time to spend with your spouse or children, revised work and home schedules, increased emotional and physical stress which could result in a weight gain or loss, depression, chronic colds or fatigue, tardiness to family, work, or social related engagements.

Taking on the role of caregiver is not an easy one. ... Adjustments, time, and understanding are a must.

Who Do Caregiver's Care For?

The typical caregiver is a 46-year-old Baby Boomer woman with some college education who works and spends more than 20 hours per week caring for her mother who lives nearby.

6 Steps to Successful Caregiving

  1. Give yourself a break!
  2. Take a crash course in the disease.
  3. Seek family assistance.
  4. Implement financial and legal planning.
  5. Join a support group.
  6. Take advantage of community resource

What Others Caregiver's Have Said

"Self-sacrifice by the 'Carer' is very counterproductive - the 'Cared-for' person will not be able to help if the Carer has a mental breakdown"
(Carer, ACT, Australia)

"One day I was feeling down - sitting there looking at my wife who didnt even seem to know who I was, thinking about the holidays we had and the holidays we had planned but wouldn't have. I asked her if she would like a cup of tea. She looked so happy, smiled and said "yes, please". I felt so good that I was able to make her happy and I thought I'm not going to make myself sad thinking about what we can't do; I'm just going to enjoy these moments that we can have and enjoy. Doing this helped to keep me going while I looked after Julie before she passed away"
(Carer, NSW, Australia)

"My husband was very helpful around the house and he did a lot of the housework. I suppose that I was used to this help. Now that he can't remember what he is doing and can't help, I am finding it very difficult to have to do everything. This is one of the hardest things to get used to. My daughters left homne years ago and now it seems that I have to spend the rest of my life doing everything around the house myself. I was expecting retirement to be a time we could both enjoy. Not a time to look after another 'Child'. He has changed with the grandchildren too. He loves having them come to stay and they would always find something to make or fix in his workshop. They all enjoyed these times together. Now he has stopped doing this and they aren't sure what to do about it. I've explained dementia to them and they understand what is happening. They still find the changes difficult to accept. He's changed from the loving grandfather to a friendly stranger for them"
(Carer, Qld, Australia)